Tag: hope

The Fix-It Fairies

Publishing my first book is an exciting time. I love how a simple story I once told my kids has transformed into something real.

A couple of years ago, I did what all moms do. I made up a story to comfort my daughter after she got hurt. She questioned why it took so long for her cut to heal and while the nerd in me wanted to talk about the process of cell regeneration, I knew that my three year old would not take that as an answer.

Instead, I told her of a group of fairies. These fairies were not magical but they were hard workers and they would come when she was sleeping to help fix her cut. These fairies soon became a part of our household conversations. Both Evelyn and her brother, Alexander would talk about the progress the fairies made the night before, and for once, they were excited about healing, instead of painful aware of the long process it took. Evelyn’s addiction to Bandaids even subsided as she realized it would make the fairies work even more difficult if they had to crawl under the Bandaids in the middle of the night.

About a year ago, my husband told me that the Fix-It Fairies needed to be shared with the world. So, one day, I sat down and wrote out the story I had been telling the kids. I didn’t think too much about it, but instead of stressing, I sent out the first draft to a publisher. Within a week, there was a response: it was being sent to the editors. Then a month later, I was sent a contract. Now, here we are and this little story, made up out of desperation to calm a hurt child, is about to be released.

May 15, 2018.

I am shocked. I am excited, but mostly, I am thrilled that this story that helped my own children can be used to help children everywhere. It is about hope and hard work. It is fun and is something I hope to read to my grandchildren when they are young. It is something that I hope my children will always treasure and look back at, knowing that they inspired these fairies to come to life and helped me create the book.

Writing a children’s book was a fun adventure for me. The process of getting the book from random thoughts in your head to being on paper to getting published for the world to see is a lot more stress than I had originally thought it would be. However, it is worth it. I also had a lot of help from my wonderful husband and my awesome kids, especially when it came to the illustrations. If I had to do it all over again, I would in a heartbeat. In fact, the kids and I have already started thinking of other books that we should write. We shall see.

If you do want to check out the book, It is on Amazon:

The Fix-It Fairies by Samantha Gray

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A Year’s Journey

Blog: It’s been a while since my last post. A lot has happened. Here is a recap and a forecast of what the future may bring. Wish us luck.

It’s been quite a while since I last wrote a post. We have pushed the pause button on our RV journeys for the time being. We made it through 12 states and ended up deciding to settle back down in Idaho, almost right where we left off. Our house is still being rented out (with amazing renters I must say) so we decided to keep living in the RV, since it only made sense.

Yes. I said it. We are STILL living in an RV with two kids and a dog and so far we haven’t lost our minds. So far.

I must also add in there, that we are living on the ostrich farm that Dan works for. So now, instead of just having one dog, we also have four Great Pyrenees, three goats and about 450+ ostriches (and growing…). It is quite a life to say the least.

In the last 12 months, we have downsized immensely. We have learned to live simpler, happy, more fulfilling lives. We have grown as a family and learned a lot about ourselves. We have seen the western United States and visited 17 National Parks and Monuments (if I counted right… it may be 18). We found beauty in nature. It has been beyond amazing.

We have also struggled. My health has not improved the way we hoped it would. Being in close quarters with two kids sometimes makes me feel like I am losing my mind. Living in an RV is not as glamorous as one would think (ok… no one thinks RV living is glamorous). I miss taking long, hot bubble baths. I miss sitting at a real dining room table having dinner. There isn’t much room for toys, so they end up on the floor ALL THE TIME. My kitchen is tiny and there are times (everyday) that I seem to find myself trying to cook with two kids and a dog all in the 21 sq ft of space. I miss my old kitchen soooo much.

However, in this year, Alexander and Evelyn have excelled in their academics (homeschool). They get along SOOOO much better. They have learned to help one another. With all of our traveling, they have learned to make friends quicker (although they are still pretty shy). They have pushed through long hikes and have thrived without technology. I’m beyond proud of all their achievements and their growth. I’m honored to be their mom and humbled to be their teacher. It has been a good year.

So… what do we have in store for year two?

For starters, I have a short children’s book being published in the next month. It is exciting because it started off as a quick story I made up on the fly and progressed into a fairy tale the kids loved talking about. We are very excited to see it come to life and anxiously await the release.

We are still going to be at the ostrich farm. I have begun to work in the social media and customer service realm while Daniel still works as the Assistant Manager. American Ostrich Farms is an amazing company. They have values and morals and I am proud to have my children see daily what sustainable meat production is like. I love everything about the ostriches and am excited to start working with them in soap production, using the ostrich oil in phenomenal soap.

The kids are still homeschooled. Alexander is learning to play the guitar and they are both in Jiu Jitsu. We love the flexibility of homeschooling and the ability to focus on what we need to or advance as we see fit. The kids love being able to sleep in (almost as much as I do). It just works better for us so we will keep it going.

This summer, we are planning on returning to Wisconsin to visit family for a week or so. We are also hoping to make it to the Redwoods in California as well since it was part of California we missed the first go-around. We have built a greenhouse so I already have plants started and we are going to plan a huge garden. Maybe do a farmer’s market or two. Maybe just donate the produce to the homeless shelters. We will see. I have never had the green thumb, but I feel as though this may be the year.

This has been a long rant, and for that I do apologize. I want to thank all of you for your support, encouragement, love and friendship. It means the world to me to have you in my life and the messages I have received since starting this journey have helped us keep our heads above the water. I have met so many new friends on this journey and I hope to continue to keep in touch and meet many more.

Until we meet again.

Invisible Sludge

When your nightmares come to life yet you are the only one that can see them… Autoimmune disease and the true reality of a fake perception.

I have had the dream for as long as I can remember. It is one where I am running but I am stuck in some sort of sludge. not physical sludge, but one that I can’t see. It is pulling me down, making me slow, letting the bad guys get closer and closer. I can see my escape but I don’t know if I can reach it before they get to me.

Now I am an adult. I know I am fast. I have made myself that way over many years of training. I know I am strong. I eat well and make sure I don’t get sucked into a vicious cycle of fast food and unhealthy choices. I have made the decision to avoid the sludge. Yet, somehow, the dream has breached into my reality. My body doesn’t function the way it did even a year ago. It is painful to step up or down stairs; to squat down to give my children hugs. The exhaustion clings to me, pleading with me to stay in bed or lay down a bit longer. Sometimes the pain is so bad that it brings me to my knees. The dream has seemed to taken over a body that was trained to fight, but I haven’t surrendered to it.

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Even though my body may want to quit, I have two beautiful children that keep me striving towards my super-hero status. 

Learning to live with an unknown autoimmune disease is almost as if I am living in that nightmare. My body wants to quit on me, but yet, my mind keeps trying to tell me to keep running. To not give up. To keep moving. Just a year ago, I was the definition of health. I felt great, my body was strong. I was Super Mom (well at least thats what my kids thought). However, things started changing. Fast.

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My life just a couple years ago. Fit, strong, and unstoppable

Now, I look in the mirror and I am a girl trapped in glass. My body still looks the same. However, it is the battle that is going on inside that has changed me. That is the hardest part. I look like a very healthy woman. So healthy that my immune system doesn’t know what to do but to fight itself. It has left me blinded in one eye and has presented me with issues such as extreme fatigue, joint pain, migraines, and painful muscle spasms to name a few. I keep hoping this is just another nightmare that I will awaken from, but I know better. This is my new normal, at least for now.

 

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Even with only one eye, I am still able to see how lucky I am

I am not a person who posts the bad things about my life. It just isn’t my style. However, with this post, I am hoping for people to realize that what their eyes may see when looking at a picture or a person isn’t the whole story. Just because people make look healthy or happy doesn’t mean they are. Perception is not reality. In fact, I have talked to many people who are sick, have been sick or who are disabled and I would never have known if it weren’t for their courage to talk to me about their experiences. What you see with your eyes is only an optical illusion when it comes to a person’s life and their struggles. Please remember this when you talk to someone. We rarely know what a person is going through and we never know the whole truth about their feelings or their pain.

I haven’t given up on my body. I keep fighting, even when it causes repercussions that last for days or weeks. I still have unfinished dreams and goals that I need to achieve and nothing will stop me from trying. I have had a rough year but it is only a year, not an eternity. I hope that one day, the dream will end. I will make it out of the sludge and get away. However, even if the sludge is still trying to hold me back, I will continue to run away from the darkness trying to take over. I will keep running towards safety and I wont let this nightmare get to my heart and soul.

So until then, the nightmare continues, even when I am awake. The sludge is slowly incapacitating me. I am trying to run but my body is in fighting something it can’t see. This may not be my dream anymore, but I do know how it always ends. Somehow, someway, I always manage to escape. Maybe that is what life is all about: making it through the sludge and coming out a better person.

 

How to be a “Leaf in the Wind”

The lessons I am learning as I work at letting go the idea of normal.

I had a conversation with my mother yesterday. Being Mother’s Day and all, I tried my very hardest not to engage in any kind of argument, however, being she is my mother and I her daughter, that can be quite difficult. It also didn’t help that I called at a time when I was not feeling the best. I was on edge and didn’t have much patience for some reason. I would love to blame it on the medications I am on to help save my sight and even though being grumpy is a common side effect, I am bound and determined to be in control of my emotions. This means I was just not in the mood.

Before I begin this story, I suppose I should also tell you that my mother does not know of my medical issues, therefore she really doesn’t understand the basis for us renting out our house, buying an RV and traveling. She does not know that I have lost vision in one eye and that I had to quit my job due to the illness, not because I wanted to explore the country, homeschool my kids, and start a blog. She believes that I chose to do this because I am a “leaf in the wind” of sorts; not wanting to settle down and establish roots. I’m still waiting for the right time to tell her, but telling her over the phone is not the place and considering I haven’t seen my mother in over ten years, I am not sure when this conversation will take place.

The conversation started with the traditional “Happy Mother’s Day” stuff followed by me letting her know I was currently in San Diego. We talked about the kiddos a bit and how nice the shower pressure was in the hotel compared to the RV. (Surprisingly, I was not as thrilled with staying at a hotel as I thought I would be after living in an RV). She then asked me the loaded question: “So how does it feel to just not to work and travel all the time?”

“Deep breath. Know your audience. Count to ten. Close your eyes. Another deep breath. Remember…. It is Mother’s Day.” My mental list for relaxing was not quite working. Yes. She is right. I did quite my job and yes, I am traveling. But I had to quit my job. I am losing my vision. I can not stare at a computer all day. Even as I write this post, my eyes are closed due to the immense pressure and pain caused by straining or even trying to move my eyes. We are traveling because I want to see this country while I still can. We are not on a vacation. We are living the RV full-time lifestyle. I am homeschooling two kids. That is more work than ANY job I have ever had. In fact, I would be lying if I said I didn’t miss having a “real” job that earned money and allowed me to run away to a corporate environment while my kids drove their other teachers to drink. We are not bringing in the same money we used to. It is not all fun and games all the time.

I love traveling around the country. It is beautiful. The people are unique and diverse. There is so much to learn, see, visit and experience. However, it isn’t always that spectacular. It is a lot of work trying to figure out campsites, places to visit, YOUR BUDGET. It is exhausting when you realize that on top of seeing the beauty of the country, your first priority is to teach Math, Grammar, Spelling, Reading to the little people living with you and now provide all three meals of the day.

Being a “leaf in the wind” requires a whole new perspective. One that allows you to accept any change and to roll with it, whether it is good or bad. It means that some days, even though life may be shitty, you figure out how to let it turn to gold. I’m not quite at that point. I am more like a kite. I have let myself fly in the wind and am getting used to the breeze. I am learning how to soar and I pray that when I land in the branches, it is only temporary.

I wish I could tell you how to be a leaf in the wind. How to accept and embrace all the changes. Hopefully one day, I will be able to write a post about that. Until then, I have learned a few things I can share:

First: There is no such thing as normal. We are all mutations of sorts. All abnormalities trying to get along and survive in this crazy world. I don’t want to be normal. I want to learn how to embrace my new normal. Whether it is a good day or a bad day, it is MY day.

Second: Stress comes in more forms than one can imagine. Whether it is working, planning a trip, homeschooling kids, getting dinner ready or even going for a walk; there is some sort of stress that is wrecking havoc in your body or head. Having an autoimmune condition is slowly teaching me that I need to embrace the stress instead of fight it. If something is too much, I need to stop the battle. If not, I only fuel the stress.

Third: You BECOME the people you surround yourself with. Negative people only come branches keeping you from flying in the wind. I was able to see some great friends this weekend that reminded me of all the good energy that I need in my life. I am also so blessed to have a husband that is willing to sacrifice so much and be so supportive of me in this crazy time. If I gave into the fake people, the negative people and the people who thrive on insecurities, I would only suffer more. Instead of letting the negative people control me, I let them go and do not waste my time trying to make them happy. It is better this way, even if it is hard at first.

Finally: Breath, laugh, reflect, relax and enjoy the ride. You may not be thrilled at the ride you are on or satisfied where it has led you, but it is YOUR ride. Make the most of it. I don’t have the best relationship with my mother, but I am bound and determined that that aspect of my life isn’t going to hold me back. My body is fighting itself, but it isn’t going to keep me down. Gas prices are through the roof in California, but that doesn’t stop me from taking a walk on the beach. YOU are the only one who can make your day be good or bad. It is alway YOUR choice on what you FEEL.

So going back to my phone conversation. It was Mother’s Day. I didn’t lie to make her feel better but I did tell her (for the 50th time) that this wasn’t a vacation. I love homeschooling the kids. I miss working in so many ways. However, I was okay. I was making the most of every day. I was exploring and I finally was able to SEE the Pacific Ocean for the first time in my life. Maybe this summer when I am finally able to visit her and introduce her to the man I have been married to for eight years and her two grandchildren, I will tell her more about the life I have been living. But until then, I am doing my best. I may not be a leaf in the wind just yet, but I am doing alright being a kite in a field.

Before the world goes dark

When the things you take for granted are taken away from you.

Imagine if you will. It is 7am. You are drifting in and out of consciousness, contemplating waking up when your four year old daughter lands on the bed. “Good moaning mom!” she exclaims, still not yet able to get that good “r” sound. She loves the mornings when she is one of the first ones up. She curls up next to you and starts coaxing you out from under the covers. “Mom! It’s moaning! The sun is shining! The birds are singing. The flowas are going to bloom today! You have to get out of bed!” Her giggles are contagious and uplifting, better that the coffee you can smell brewing in the kitchen. She snuggles her face up to yours, gently nudging like a puppy would do. You open your eyes. You can’t see her. And right at that moment, your heart drops and a tightness rises in your chest. You can’t see her.

You can’t see her expresso eyes glittering as the sun coming into the window hits them. You can’t see those chubby cheeks that you kiss at least fifty times a day. You know she is there, but she is hidden. You have been blinded in one eye with the very real possibility of being blinded all together. Today, you are able to roll over so the one good eye can see that beautiful miracle you made. But before you are able to think about how lucky you are that she is yours, you first have to push aside the fear that one day, that face may forever be hidden from you.

This is my story. Over the last few months, I have lost the eyesight in my right eye. My eyes constantly hurt with pain ranging from throbbing to stabbing pain. It is accompanied with other issues such as muscle weakness, fatigue, and body pain, but the loss of vision is the main issue that have the doctors struggling to find answers. I have been through more tests than I can count, yet we don’t have an answer for why I have lost half my sight or how much further it will go. As of the current moment, the doctors know I have some sort of autoimmune disease that is causing my body to attack itself, but autoimmune diseases are interesting in the fact that some are nearly impossible to diagnose or even figure out what can cure or at least slow it down.

Millions of people in this world suffer from autoimmune diseases. Some being very well known life Multiple Sclerosis, Celiac Disease, Type 1 diabetes. However, many are still random, unknown and not understood. It not only makes a person going through the process feel lost, but also a bit like they are losing their mind. There are days I can go all day without any issues (other than the whole blindness thing), and there are days where I feel like I am trying to workout while battling the flu. Days where naps are mandatory and even then, there is no energy flowing through my body. It’s perplexing, haunting, frustrating, and heart wrenching to say the least.

I have had to quit my job as a result of my loss of vision as well as the other physical tolls that this disease is having on me. I miss working. I miss the people, the job and the mission I was a part of. It is hard dealing with a constant sense of defeat, but I am not the type of person who settles and admits defeat. Luckily for me, I have a wonderful husband who has been there for me throughout this and is supporting me like no other. We decided to buy an RV. We took the kids out of school. We are traveling. We are seeing the world before the world goes dark. We are learning how to adapt.

My son is kind of like my seeing-eye kid. He walks on my right side everywhere we go and tells me what is on that side so I don’t bump into anything. He keeps me focused on the positive. My husband is devoted to finding a natural way for my body to heal itself. We are working on breathing, meditation, yoga. He reminds me not to stress myself out. He is understanding and encouraging. And then there is my daughter. Well, she is a bit too young to understand the concept of being sick. That’s what I like most. She pushes me to get out of bed. To open my eyes. To giggle and cuddle as much as possible. To go outside and see the “flowas” bloom.

The spring is here, it is a beautiful day. Let’s go out and see it.