I have had the dream for as long as I can remember. It is one where I am running but I am stuck in some sort of sludge. not physical sludge, but one that I can’t see. It is pulling me down, making me slow, letting the bad guys get closer and closer. I can see my escape but I don’t know if I can reach it before they get to me.
Now I am an adult. I know I am fast. I have made myself that way over many years of training. I know I am strong. I eat well and make sure I don’t get sucked into a vicious cycle of fast food and unhealthy choices. I have made the decision to avoid the sludge. Yet, somehow, the dream has breached into my reality. My body doesn’t function the way it did even a year ago. It is painful to step up or down stairs; to squat down to give my children hugs. The exhaustion clings to me, pleading with me to stay in bed or lay down a bit longer. Sometimes the pain is so bad that it brings me to my knees. The dream has seemed to taken over a body that was trained to fight, but I haven’t surrendered to it.

Learning to live with an unknown autoimmune disease is almost as if I am living in that nightmare. My body wants to quit on me, but yet, my mind keeps trying to tell me to keep running. To not give up. To keep moving. Just a year ago, I was the definition of health. I felt great, my body was strong. I was Super Mom (well at least thats what my kids thought). However, things started changing. Fast.

Now, I look in the mirror and I am a girl trapped in glass. My body still looks the same. However, it is the battle that is going on inside that has changed me. That is the hardest part. I look like a very healthy woman. So healthy that my immune system doesn’t know what to do but to fight itself. It has left me blinded in one eye and has presented me with issues such as extreme fatigue, joint pain, migraines, and painful muscle spasms to name a few. I keep hoping this is just another nightmare that I will awaken from, but I know better. This is my new normal, at least for now.

I am not a person who posts the bad things about my life. It just isn’t my style. However, with this post, I am hoping for people to realize that what their eyes may see when looking at a picture or a person isn’t the whole story. Just because people make look healthy or happy doesn’t mean they are. Perception is not reality. In fact, I have talked to many people who are sick, have been sick or who are disabled and I would never have known if it weren’t for their courage to talk to me about their experiences. What you see with your eyes is only an optical illusion when it comes to a person’s life and their struggles. Please remember this when you talk to someone. We rarely know what a person is going through and we never know the whole truth about their feelings or their pain.
I haven’t given up on my body. I keep fighting, even when it causes repercussions that last for days or weeks. I still have unfinished dreams and goals that I need to achieve and nothing will stop me from trying. I have had a rough year but it is only a year, not an eternity. I hope that one day, the dream will end. I will make it out of the sludge and get away. However, even if the sludge is still trying to hold me back, I will continue to run away from the darkness trying to take over. I will keep running towards safety and I wont let this nightmare get to my heart and soul.
So until then, the nightmare continues, even when I am awake. The sludge is slowly incapacitating me. I am trying to run but my body is in fighting something it can’t see. This may not be my dream anymore, but I do know how it always ends. Somehow, someway, I always manage to escape. Maybe that is what life is all about: making it through the sludge and coming out a better person.
I know your pain, I know the judgement people project on you. I also know the inner strength you have. Keep fighting, you are super mom. If you ever need to talk let me know. Will keep you in my thought and prayers.
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Thank you. I have been so fortunate to have a lot of wonderful people as well as great doctors who have helped me through everything so far. It’s so hard to not feel like you are spiraling out of control but with support like I have received, I know everything will be okay. Thank you.
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